Before it gets dark

Documentary - 2019

Lotte (18) and Roos (16) are sisters and both have Usher syndrome. That means they will soon become deaf and blind. It is not known how fast that will go, but they already see and hear a lot worse than their peers. How do these two high-spirited girls deal with their development into adulthood, while the time bomb of deafness and blindness ticks inexorably? They are not deterred from getting the most out of life: Lotte is studying to become a photographer and Roos is passing her final exams. At the same time, they also want to do a few things before it is too late, such as seeing the Northern Lights with their own eyes. Director Kim Smeekes followed Lotte and Roos for the film for two years.